RadioOnFire Special Coverage broadcast was hosted by Val Jenkins. 5 survivors shared their stories with a Doctor present as they discussed Chiari Malformation.
"It was an honor and privilege to tell my story today," Val Jenkins said. "
Our stories may be different but what we all have in common is we struggle with a disease daily that does not get the attention it deserves," she continued.
"Our symptoms are invisible to most but real to us and we refuse to stay silent any longer. We are not looking for pity, we are looking for solutions."
Watch the full episode below.